Make every day a good one...

Just one ounce of courage...

Grandfathers Rock!

Sons...

Captain Chaos!!

Chase's Trisomy 21 diagnosis was a surprise at his birth - and he hasn't stopped surprising everyone since. He excels at everything he puts his mind to - which is mainly manipulating situations to get attention and/or cookies. Chase loves anything physical - kicking a soccer ball, dancing, running around at the beach, destroying a room in 5 seconds flat (earning himself the affectionate nickname "Captain Chaos"). Chase also loves words. At 2, he can recognize over 100 words and is daily surprising his parents with new ones. He is a big personality crammed into an adorable little blonde package and nothing is going to hold him back in life. We are ever thankful for the unconditional love and support from our friends and family and cannot wait to see what Chase has in store for the future.

Who are you?

Fearless

Stand Out!!

Smiles!!!

Sibling love!

Everything Matters

Never, ever...

A great purpose!

Focus on today.

Let Your Light Shine!

Miracle Man!

Micah was born 6 wks early

He had open heart surgery at 3 months old.

He was diagnosed with Acute Mylegenous Leukemia in 2007. 

This June he will be 5 years cancer free!

Possibilities are endless

Even if it may be one person....

A better world

Autism ~ I am 1 in 88

Skylar is 1 in 88!

Autism is all around you! You probably haven't noticed it! It could be your friends, colleagues, teachers and family! It could be your doctor, your lawyer or even the clerk at the supermarket. 

Skylar is on the Autism spectrum. She has Aspergers syndrome. She is super smart and loves to let people know when they are wrong. One day she will grow up to be the most amazing mother and wife.

Today is Autism awareness day - celebrated on April 2nd. Wear blue and spread the awareness!!

Dream daughter...

Breanna's Battle

Taken from her facebook page:

This page was made so that people can learn and understand what breanna is going threw on march 23 2012 breanna was born with many heart defect little did we know at just 3 weeks 
old she went under the 1st of many heart surgery's and at only a month old i though we would have to say goodbye but the good lord had other plans she is now 6 months old awaiting 
her next heart surgery 



(AV CANAL )
Atrioventricular canal defect is a combination of several abnormalities in the heart present at birth (congenital abnormalities)
This defect, which is sometimes called endocardial cushion defect or atrioventricular septal defect, occurs when there's a hole between
the chambers of the heart and problems with the valves that regulate blood flow in the heart. Atrioventricular canal defect allows extra
blood to circulate to the lungs.Ensuing problems overwork the heart and cause it to enlarge. Atrioventricular canal defect is often associated with Down syndrome. If left untreated, atrioventricular canal defect may cause heart failure and high blood pressure in the lungs. To fix this defect, doctors often recommend surgery during the first year of life to close the hole and reconstruct the valves.


(Hypoplastic left heart syndrome) HLHS

Hypoplastic left heart syndrome occurs when parts of the left side of the heart
(mitral valve, left ventricle, aortic valve, and aorta) do not develop completely.
The condition is present at birth (congenital).


(THIS IS BREANNAS CHROMOSOME ISSUES )
What is Chromosome 10p duplication/10q deletion syndrome?•Chromosome 10p
duplication/10q deletion syndrome: A rare chromosomal disorder where a section
of the short arm (p) of chromosome 10 is duplicated and a section of the long arm
(q) of chromosome 10 is deleted resulting in various abnormalities.•Chromosome
10p duplication/10q deletion syndrome: Duplication of a portion of the short arm
of chromosome 10 combined with deletion of the long arm of chromosome 10
. Clinical manifestations are similar to those seen in patients with chromosome
10p duplication and chromosome 10q deletion syndromes. The most frequently
occurring defects include central nervous system disorders (hypotonia, poor
feeding, and mental retardation), cranial anomalies (microcephaly, dolichocephaly
, retrognathia, wide sutures, frontal bossing, cleft lip and palate, and nose
malformations), skeletal deformities (clinodactyly, camptodactyly, and clubfoot),
urogenital anomalies, and cardiac defects


(THE REASON BREANNA HAS A TRACH )
tracheomalacia
Pediatrics Congenital weakness of the tracheal wall which occurs when the
cartilage in the trachea fails to develop or mature in a timely manner, with
↓ rigidity Clinical Stridor, rattling breath that worsens with URIs; as the trachea
l cartilage grows, noisy respirations and breathing difficulties recede. See Stridor.

( THE REASON FOR THE FEEDING TUBE )
Dysphagia is the medical term for the symptom of difficulty in swallowing breanna cant not eat or swollow to this day
with out throwing up or gaging and her stomach is to small and can only hold so much food at a time ....so she now
eats threw a GJ feeding tube

The Love Chromosome

"Bradlee was born with the Love chromosome and Tetralogy Of Fallot. He is my hero. Love does make miracles."   - Alicia, Bradlee's Mom

Trisomy 9 Mosaic

Memories are made...

Welcome!

Hi everyone!

Melanie, here!

I wanted to start something fun and exciting to show of our cutie patooties and spread awareness about our loved ones with that Extra Chromosome.

I intend to start this here and see where it goes!

Thank you for following along!

Blessings,
Melanie M